• Event Date
  • 2022-11-03   and 2022-11-14
  • 5:00pm – 8:00pm London time

Programme Organising Committee

Jarod Wong (University of Glasgow, United Kingdom) Leanne Ward (University of Ottawa, Canada) Michela Guglieri (Newcastle University, United Kingdom) Elizabeth Vroom (Duchenne Parent Project Netherlands) Pat Furlong (Parent Project Muscular Dystrophy) Alex Johnson (Duchenne UK)

ICCBH

The International Conference on Children’s Bone Health

World Duchenne Organization

Umbrella organization of 52 DMD patient organizations

Draft Programme

The agenda is currently being finalised. Changes in timings, speakers and topics might occur.

  • 5:00

    Welcome


  • 5:05

    The impact of steroids and DMD on skeletal and endocrine morbidity

  • 6:05

    Current bone monitoring and treatment strategies in DMD and the 2018 international standards of care

  • 6:15

    World Duchenne Organization and role in implementation of standards of care globally


  • 7:15

    Implementing standards of care in the clinic with focus on bone/endocrine monitoring and management: Challenges, successes and lessons learnt

  • 7:40

    Discussion


  • 7:50

    Wrap-up, next steps

  • 5:00

    Welcome and introduction


  • 5:15

    Moving beyond the 2018 minimum international standards of care for bone management in DMD

  • 6:00

    Discussion


  • 6:15

    New therapeutic approaches for osteoporosis in DMD

  • 7:35

    Discussion


  • 7:45

    Closing ceremony, next steps